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Featured publications

Theme: Improving care

Linked project: NeuroLTC
The Causes and Impact of Crisis for People with Parkinson’s Disease: A Patient and Carer Perspective

Fearn S, Bartolomeu Pires S, Agarwal V, Roberts HC, Spreadbury J and Kipps C

The reasons for acute hospital admissions among people with Parkinson’s disease are well documented. However, understanding of crises that are managed in the community is comparatively lacking. Most existing literature on the causes of crisis for people with Parkinson’s disease (PwP) uses hospital data and excludes the individual’s own perspective on the crisis trigger and the impact of the crisis on their care needs.
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Researchers:

Portrait image of Chris Kipps

Professor Chris Kipps

Role: Consultant Neurologist

Chris is a Consultant Neurologist with subspecialty interest in behavioural neurology and cognitive disorders, and Professor of Clinical Neurology and Dementia at University Hospital Southampton and the University of Southampton. He leads the Cognitive Disorders service at the Wessex Neurological Centre.

Chris is Clinical Director for Research and Development at...

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Dr John Spreadbury

Role: Senior Research Fellow

John is a senior research fellow within the NIHR ARC Wessex, Ageing and Dementia Theme, based in the Faculty of Medicine at University Hospital Southampton.

John’s research interests include digital health technology in the context of long-term neurological conditions and neurodegenerative diseases, young-onset dementia care and psychosocial experiences, and psychosocial measurement...

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Portrait image of Sarah Fearn

Dr Sarah Fearn

Role: Senior Research Fellow

Sarah joined the Faculty of Medicine at the University of Southampton as a Senior Research Fellow in 2016 and has extensive experience carrying out research into care for people with long-term neurological conditions.

Sarah’s research often focuses on the patient perspective and she is keen to increase the participation of...

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Other publications in the Improving care theme:

Quality of Life Assessments in Individuals With Young-Onset Dementia and Their Caregivers

Dixit D, Spreadbury J, Orlando R, Hayward E and Kipps C

Quality of life (QoL) has seldom been investigated or explicitly measured in young-onset dementia (YoD). The aims of this study were (1) to investigate and compare QoL self- and proxy...

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Clinical nurse specialist's role in young-onset dementia care

Spreadbury JH and Kipps CM

Post-diagnostic care in young-onset dementia (YoD) varies, from something that is occasionally structured, to improvised, to frequently non-existent depending on geographic region. In a few regions in England, a nurse...

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Neuro LTC: Online integrated care plan

Chappell R & Kipps C

Complex long-term neurological conditions often require the input of several health care teams across primary and secondary care settings. Personalised care plans allow for integrated care planning and improved communication...

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A Comprehensive Literature Search of Digital Health Technology Use in Neurological Conditions: Review of Digital Tools to Promote Self-management and Support - Journal of Medical Internet Research

John Spreadbury, Alex Young, Christopher Kipps

The use of digital health technology to promote and deliver post diagnostic care in neurological conditions is becoming increasingly common. However, the range of digital tools available across different neurological...

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