Theme Group: Improving care

Sub Theme: Quality of life

Status: Active

Project overview:

This study uses surveys and focus groups to identify the factors that help to maintain an individual’s optimal level of living with the neurological condition (baseline factors), the critical events that can cause a change in care requirements in each of five neurological conditions, and the impact of fatigue. By identifying and better understanding baseline factors, critical events and the features of fatigue in long term neurological conditions, our findings will enable future research to stratify long-term neurological conditions by the degree of complexity and individual burden and match service users more effectively to appropriate clinical and social care resources.

The Causes and Impact of Crisis for People with Parkinson's Disease: A Patient and Carer Perspective

Fearn S, Bartolomeu Pires S, Agarwal V, Roberts HC, Spreadbury J and Kipps C

The reasons for acute hospital admissions among people with Parkinson’s disease are well documented. However, understanding of crises that are managed in the community is comparatively lacking. Most existing literature...


Portrait image of Chris Kipps

Professor Chris Kipps

Role: Consultant Neurologist

Chris is a Consultant Neurologist with subspecialty interest in behavioural neurology and cognitive disorders, and Professor of Clinical Neurology and Dementia at University Hospital Southampton and the University of Southampton. He leads the Cognitive Disorders service at the Wessex Neurological Centre.

Chris is Clinical Director for Research and Development at...

Portrait image of Sarah Fearn

Dr Sarah Fearn

Role: Senior Research Fellow

Sarah joined the Faculty of Medicine at the University of Southampton as a Senior Research Fellow in 2016 and has extensive experience carrying out research into care for people with long-term neurological conditions.

Sarah’s research often focuses on the patient perspective and she is keen to increase the participation of...

Supporting documents: