Improving care for people with long term neurological conditions

About this theme:

The care that people with long term neurological conditions require can vary over the course of the condition. Our research into improving care for people with long term neurological conditions sits within two broad areas:

Quality of life

Long term neurological conditions can impact the quality of life of patients and their carers. Our research focuses on factors that influence quality of life. Key areas include:

  • Promoting patient self-management and support for caregivers.
  • Developing measures and metrics of patient and carer quality of life and related outcomes.
  • Understanding individual care requirements and the factors that affect these.
  • Evaluating how the delivery of care affects patients and their carers.

Digital care

Advances in technology and digital care offer new opportunities to deliver care differently.  Our research aims to investigate how to maximise this opportunity. Key areas include:

  • Enabling people to access and use digital health technology, including online care platforms to support self-management and care delivery.
  • Developing strategies to support patients and carers to better manage their care using online resources.
  • Empowering healthcare professional use of digital health technology, including optimising use, increasing confidence, and sharing skills and expertise.

Researchers working within this theme:

Portrait image of Chris Kipps

Professor Chris Kipps

Role: Consultant Neurologist

Chris is a Consultant Neurologist with subspecialty interest in behavioural neurology and cognitive disorders, and Professor of Clinical Neurology and Dementia at University Hospital Southampton and the University of Southampton. He leads the Cognitive Disorders service at the Wessex Neurological Centre.

Chris is Clinical Director for Research and Development at...

Dr John Spreadbury

Role: Senior Research Fellow

John is a senior research fellow within the NIHR ARC Wessex, Ageing and Dementia Theme, based in the Faculty of Medicine at University Hospital Southampton.

John’s research interests include digital health technology in the context of long-term neurological conditions and neurodegenerative diseases, young-onset dementia care and psychosocial experiences, and psychosocial measurement...

Portrait image of Sarah Fearn

Dr Sarah Fearn

Role: Senior Research Fellow

Sarah joined the Faculty of Medicine at the University of Southampton as a Senior Research Fellow in 2016 and has extensive experience carrying out research into care for people with long-term neurological conditions.

Sarah’s research often focuses on the patient perspective and she is keen to increase the participation of...

Portrait image of Rachel Chappel

Dr Rachel Chappell

Role: Southampton Emerging Therapies and Technology (SETT) Center Manager

Following a PhD in chemistry Rachel worked in the IT industry for 10 years before joining the NHS where she has now spent 20 years working across many areas.

From 2015 Rachel spent 6 years with the NHS England Clinical Network promoting quality improvement in the dementia care pathway across...

Dr Patricia Fuller

Role: Research Fellow

Patricia is a Research Fellow within the Faculty of Medicine at the University of Southampton.

She is currently working on the Optimising Outpatients project. This project is using interview and focus group data from our research group together with survey data from the Neurological Alliance and Association of British Neurologists...

Theme projects:


Sub Theme Improving care