Improving care for people with long term neurological conditions
About this theme:
The care that people with long term neurological conditions require can vary over the course of the condition. Our research into improving care for people with long term neurological conditions sits within two broad areas:
Quality of life
Long term neurological conditions can impact the quality of life of patients and their carers. Our research focuses on factors that influence quality of life. Key areas include:
- Promoting patient self-management and support for caregivers.
- Developing measures and metrics of patient and carer quality of life and related outcomes.
- Understanding individual care requirements and the factors that affect these.
- Evaluating how the delivery of care affects patients and their carers.
Advances in technology and digital care offer new opportunities to deliver care differently. Our research aims to investigate how to maximise this opportunity. Key areas include:
- Enabling people to access and use digital health technology, including online care platforms to support self-management and care delivery.
- Developing strategies to support patients and carers to better manage their care using online resources.
- Empowering healthcare professional use of digital health technology, including optimising use, increasing confidence, and sharing skills and expertise.
Researchers working within this theme:
Chris is a Consultant Neurologist with subspecialty interest in behavioural neurology and cognitive disorders, and Professor of Clinical Neurology and Dementia at University Hospital Southampton and the University of Southampton. He leads the Cognitive Disorders service at the Wessex Neurological Centre.
Chris is Clinical Director for Research and Development at...
John is a senior research fellow within the NIHR ARC Wessex, Ageing and Dementia Theme, based in the Faculty of Medicine at University Hospital Southampton.
John’s research interests include digital health technology in the context of long-term neurological conditions and neurodegenerative diseases, young-onset dementia care and psychosocial experiences, and psychosocial measurement...
Sarah joined the Faculty of Medicine at the University of Southampton as a Senior Research Fellow in 2016 and has extensive experience carrying out research into care for people with long-term neurological conditions.
Sarah’s research often focuses on the patient perspective and she is keen to increase the participation of...
Patricia is a Research Fellow within the Faculty of Medicine at the University of Southampton.
She is currently working on the Optimising Outpatients project. This project is using interview and focus group data from our research group together with survey data from the Neurological Alliance and Association of British Neurologists...
Featured theme publications: