Theme Group: Improving care

Sub Theme: Quality of life

Status: Active

Project overview:

The Young Onset Dementia Assessment Study (YODA) is a longitudinal prospective cohort study with multiple aims, including: a) Improve the understanding of the changes in the brains of sufferers and how the disease develops; b) To promote the development of evidence-based guidelines to inform clinical decision-making and improve health outcomes for participants; c) To provide a platform to support the design and conduct of clinical trials; and d) To maximize the use of routinely collected clinical data to optimize future use of such information.

Quality of Life Assessments in Individuals With Young-Onset Dementia and Their Caregivers

Dixit D, Spreadbury J, Orlando R, Hayward E and Kipps C

Quality of life (QoL) has seldom been investigated or explicitly measured in young-onset dementia (YoD). The aims of this study were (1) to investigate and compare QoL self- and proxy...


Portrait image of Chris Kipps

Professor Chris Kipps

Role: Consultant Neurologist

Chris is a Consultant Neurologist with subspecialty interest in behavioural neurology and cognitive disorders, and Professor of Clinical Neurology and Dementia at University Hospital Southampton and the University of Southampton. He leads the Cognitive Disorders service at the Wessex Neurological Centre.

Chris is Clinical Director for Research and Development at...

Dr John Spreadbury

Role: Senior Research Fellow

John is a senior research fellow within the NIHR ARC Wessex, Ageing and Dementia Theme, based in the Faculty of Medicine at University Hospital Southampton.

John’s research interests include digital health technology in the context of long-term neurological conditions and neurodegenerative diseases, young-onset dementia care and psychosocial experiences, and psychosocial measurement...

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