Neurological LTC: Online Integrated care platform study

Theme Group: Improving care

Sub Theme: Digital care

Status: Active

Project overview:

Digital health platforms can improve care and support self-management, but only if they actually work and if people make use of them. The Neuro Online study aims to better understand how the online platform My Medical Record can be used to support and improve care for people with long-term neurological conditions.
The Neuro Online study will use surveys and My Medical Record system data to better understand how and why people use the Neuro section of My Medical Record
We will also ask patients and carers about their well-being and their patient activation measure so that we can compare their experiences with the platform to this information.
As online platforms are increasingly being developed for the NHS, we hope the study will help understand how to make them relevant, useful and appealing to use. The findings should help to optimise the design and usefulness of these online tools, with the aim of supporting and improving the delivery of care

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Portrait image of Chris Kipps

Professor Chris Kipps

Role: Consultant Neurologist

Chris is a Consultant Neurologist with subspecialty interest in behavioural neurology and cognitive disorders, and Professor of Clinical Neurology and Dementia at University Hospital Southampton and the University of Southampton. He leads the Cognitive Disorders service at the Wessex Neurological Centre.

Chris is Clinical Director for Research and Development at...

Dr John Spreadbury

Role: Senior Research Fellow

John is a senior research fellow within the NIHR ARC Wessex, Ageing and Dementia Theme, based in the Faculty of Medicine at University Hospital Southampton.

John’s research interests include digital health technology in the context of long-term neurological conditions and neurodegenerative diseases, young-onset dementia care and psychosocial experiences, and psychosocial measurement...

Portrait image of Sarah Fearn

Dr Sarah Fearn

Role: Senior Research Fellow

Sarah joined the Faculty of Medicine at the University of Southampton as a Senior Research Fellow in 2016 and has extensive experience carrying out research into care for people with long-term neurological conditions.

Sarah’s research often focuses on the patient perspective and she is keen to increase the participation of...

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